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"Never spend a second hushing the percussion of your heart." Andrea Gibson, "Say Yes"
books. spoken word. queer. personal trainer. reader. writer. teacher. INFP. French speaking.
We are all works in progress. These are things I like and clips I write.
...and that's not even the first layer.
books. spoken word. queer. personal trainer. reader. writer. teacher. INFP. French speaking.
We are all works in progress. These are things I like and clips I write.
...and that's not even the first layer.
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I took a 7 week coast to coast road trip after being laid off from Boeing. I didn’t have a camper but realized that being able to pull off the road at a rest or truck stop was the way to go to make the trip affordable. With a few sheets of 1/2” plywood and misc. hardware this is what I came up with. The effort was well worth the time and materials.
(via jeremywilks)
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Angelina Jolie on why she had a double mastectomy, and how it can save lives
My mother fought cancer for almost a decade and died at 56. She held out long enough to meet the first of her grandchildren and to hold them in her arms. But my other children will never have the chance to know her and experience how loving and gracious she was.
We often speak of “Mommy’s mommy,” and I find myself trying to explain the illness that took her away from us. They have asked if the same could happen to me. I have always told them not to worry, but the truth is I carry a “faulty” gene, BRCA1, which sharply increases my risk of developing breast cancer and ovarian cancer.
My doctors estimated that I had an 87 percent risk of breast cancer and a 50 percent risk of ovarian cancer, although the risk is different in the case of each woman.
Only a fraction of breast cancers result from an inherited gene mutation. Those with a defect in BRCA1 have a 65 percent risk of getting it, on average.
Once I knew that this was my reality, I decided to be proactive and to minimize the risk as much I could. I made a decision to have a preventive double mastectomy. I started with the breasts, as my risk of breast cancer is higher than my risk of ovarian cancer, and the surgery is more complex.
On April 27, I finished the three months of medical procedures that the mastectomies involved. During that time I have been able to keep this private and to carry on with my work.
But I am writing about it now because I hope that other women can benefit from my experience. Cancer is still a word that strikes fear into people’s hearts, producing a deep sense of powerlessness. But today it is possible to find out through a blood test whether you are highly susceptible to breast and ovarian cancer, and then take action.
My own process began on Feb. 2 with a procedure known as a “nipple delay,” which rules out disease in the breast ducts behind the nipple and draws extra blood flow to the area. This causes some pain and a lot of bruising, but it increases the chance of saving the nipple.
Two weeks later I had the major surgery, where the breast tissue is removed and temporary fillers are put in place. The operation can take eight hours. You wake up with drain tubes and expanders in your breasts. It does feel like a scene out of a science-fiction film. But days after surgery you can be back to a normal life.
Nine weeks later, the final surgery is completed with the reconstruction of the breasts with an implant. There have been many advances in this procedure in the last few years, and the results can be beautiful.
I wanted to write this to tell other women that the decision to have a mastectomy was not easy. But it is one I am very happy that I made. My chances of developing breast cancer have dropped from 87 percent to under 5 percent. I can tell my children that they don’t need to fear they will lose me to breast cancer.
It is reassuring that they see nothing that makes them uncomfortable. They can see my small scars and that’s it. Everything else is just Mommy, the same as she always was. And they know that I love them and will do anything to be with them as long as I can. On a personal note, I do not feel any less of a woman. I feel empowered that I made a strong choice that in no way diminishes my femininity.
I am fortunate to have a partner, Brad Pitt, who is so loving and supportive. So to anyone who has a wife or girlfriend going through this, know that you are a very important part of the transition. Brad was at the Pink Lotus Breast Center, where I was treated, for every minute of the surgeries. We managed to find moments to laugh together. We knew this was the right thing to do for our family and that it would bring us closer. And it has.
For any woman reading this, I hope it helps you to know you have options. I want to encourage every woman, especially if you have a family history of breast or ovarian cancer, to seek out the information and medical experts who can help you through this aspect of your life, and to make your own informed choices.
I acknowledge that there are many wonderful holistic doctors working on alternatives to surgery. My own regimen will be posted in due course on the Web site of the Pink Lotus Breast Center. I hope that this will be helpful to other women.
Breast cancer alone kills some 458,000 people each year, according to the World Health Organization, mainly in low- and middle-income countries. It has got to be a priority to ensure that more women can access gene testing and lifesaving preventive treatment, whatever their means and background, wherever they live. The cost of testing for BRCA1 and BRCA2, at more than $3,000 in the United States, remains an obstacle for many women.
I choose not to keep my story private because there are many women who do not know that they might be living under the shadow of cancer. It is my hope that they, too, will be able to get gene tested, and that if they have a high risk they, too, will know that they have strong options.
Life comes with many challenges. The ones that should not scare us are the ones we can take on and take control of.
I have some positive feelings here.
(via bittersilver)
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Dancers, Mott Haven, August 1979, from the Faces in the Rubble series
Photo Credit: David Gonzalez
(via deafshepard)
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"
I am not the first person you loved.
You are not the first person I looked at
with a mouthful of forevers. We
have both known loss like the sharp edges
of a knife. We have both lived with lips
more scar tissue than skin. Our love came
unannounced in the middle of the night.
Our love came when we’d given up
on asking love to come. I think
that has to be part
of its miracle.This is how we heal.
I will kiss you like forgiveness. You
will hold me like I’m hope. Our arms
will bandage and we will press promises
between us like flowers in a book.
I will write sonnets to the salt of sweat
on your skin. I will write novels to the scar
of your nose. I will write a dictionary
of all the words I have used trying
to describe the way it feels to have finally,
finally found you.And I will not be afraid
of your scars.I know sometimes
"
it’s still hard to let me see you
in all your cracked perfection,
but please know:
whether it’s the days you burn
more brilliant than the sun
or the nights you collapse into my lap
your body broken into a thousand questions,
you are the most beautiful thing I’ve ever seen.
I will love you when you are a still day.
I will love you when you are a hurricane.Clementine von Radics, Mouthful of Forevers (via xo-nothingatall)
(Source : waydowntown, via chaosrunning)
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